College of Law - Events Calendar

Human Trials: Protecting Volunteers a Quarter Century After Jesse Gelsinger’s Death

Event Type

Lecture

Sponsor

University of Illinois College of Law, Epstein Health Law and Policy Program, Health and Elder Law Society

Location

Max L. Rowe Auditorium, Law Building

Date

Sep 4, 2024   12:00 - 1:00 pm  

Views

160

Originating Calendar

College of Law - Lectures Calendar

Human Trials: Protecting Volunteers a Quarter Century After Jesse Gelsinger’s Death 
Wednesday, September 4
12:00 pm
Max L. Rowe Auditorium, College of Law

Featured Speaker 
Paul Gelsinger 
Dad and Bioethics Advocate  

Commentary By 
Lois Shepherd 
Peter A. Wallenborn, Jr. and Dolly F. Wallenborn Professor of Biomedical Ethics 
University of Virginia  

Robin Fretwell Wilson 
Mildred Van Voorhis Jones Chair in Law 
University of Illinois College of Law  

Twenty-five years ago, Paul Gelsinger’s son Jesse, who suffered from a rare genetic condition, joined a clinical trial for gene-therapy. Tragically, Jesse became the first person to die because of his participation in gene-therapy research. To honor his son’s memory, Paul Gelsinger became a patient advocate, working since 2000 to change the gene-therapy research culture. Join us for a discussion on the last quarter century of human-subjects research trials.  

Free and open to the public. 
A limited number of lunches will be provided to attendees.